Did you know that most ambulances do not carry Solu-cortef®? Furthermore, they are not allowed to administer the shot even if you have it? We are working to develop EMS protocols for emergency medical treatment of CAH and other adrenal insufficiencies. Too many people suffer from delayed medical care in emergency situations.
Since 2009, CARES Foundation has been advocating for immediate, appropriate emergency medical response for adrenal crisis.
Current EMS protocols of many states do not :
EMS protocols are the recognized operating procedures that all emergency medical service professionals, such as paramedics and emergency medical technicians (EMTs) must follow for patient assessment, treatment, transportation and delivery to definitive care.
Why is this important?
People who do not have adrenal insufficiencies naturally produce up to ten times the normal amount of cortisol, which is vital to the maintenance of blood pressure and heart muscle tone, as well as sugar and salt balance, during times of physical stress. When illness or injury occurs in adrenally insufficient individuals, however, an immediate additional dose of glucocorticoids (hydrocortisone) is necessary to avert adrenal crisis. Delay in administration of these medications can lead to shock, heart failure and death.
Individuals affected by CAH are not always in the immediate care of someone trained in or comfortable with administration of a hydrocortisone injection. For example: a child at school when there is no school nurse, an adult affected by CAH living alone, an automobile accident in which the caregiver is incapacitated, a family on holiday outside of their “home” support network. Thus, it is important to be able to rely on EMS during an adrenal crisis.
TO BE PREPARED FOR AN EMERGENCY, YOU MUST MAKE SURE YOUR LOCAL FIREHOUSE AND/OR EMS STATION IS AWARE OF YOUR OR YOUR CHILD’S ADRENAL INSUFFICIENCY/CAH STATUS! WE URGE YOU TO VISIT YOUR FIREHOUSE/EMS STATION RIGHT AWAY! Develop an individualized plan in the event of an adrenal crisis.
Ask your EMS provider to flag your address in the 911 system so that emergency personnel are aware of your adrenal insufficiency statues.
Ask your EMS provider if your state has an identification system for those with special medical needs. These programs alert EMS providers of emergency treatment needed for those with a medical condition. These programs can include:
For a successful EMS provider visit, print a copy and bring with you:
EMS ORGANIZATIONS AND PROVIDERS: BE SURE to access the documents linked above for VITAL INFORMATION to help you better serve your communities.
Look at the map of states below to learn more about your state. Please take the time to write a letter, visit your local firehouse or EMS station and join a campaign.
CONTACT
2414 Morris Avenue, Ste 110
Union, NJ 07083
Phone: (908) 364-0272
Toll Free: (866) 227-3737
Fax: (908) 686-2019
contact@caresfoundation.org