CARES, CAH, Congenital Adrenal Hyperplasia, PACE App, OUR MISSION

Please join us for a weekend filled with educational & informative speakers and a chance to connect with other patients, parents, families, medical professionals, industry partners, and more!

The deadline to register for the LIVESTREAM is Tuesday, September 16, 2025, at 11:55PM(ET)

Click below to see the full conference agenda for both Saturday & Sunday!

08:00-09:00AM | Light breakfast & registration

09:00-09:15AM

Opening Remarks

Dina Matos, CARES Executive Director

*09:15-09:30AM

CAH Research Updates

Dr. Konrad Szymanski

*09:15-09:45AM

CAH Overview

Dr. Rita Saroufim

09:45-10:15AM

Glucocorticoids Effects on Bone Health

Dr. Erik Imel

10:15-10:30AM | Break

10:30-11:00AM

Research Updates (Adults & Peds)

Dr. Mitch Geffner

11:00-11:30AM

Genetics of CAH

Dr. Theodore Wilson

11:30-12:00PM

Managing Illness at Home; Stress Dosing (Q&A)

Dr. Alex Tuttle

12:00-01:00PM | Lunch

*01:00-01:30PM

Adrenal Rest Tumors

Dr. Todd Nebesio

*01:00-01:30PM

Early Surgical Intervention

Drs. Whittam & Meldrum

*01:30-02:00PM

Non-Classic CAH + Q&A

Drs. Haddad & Fuqua

*01:30-02:00PM

Talking to Your Child About Surgery

Dr. Kelly Donahue

02:00-02:30PM

Glucocorticoid Regimens & Considerations | A Pediatric Perspective

Dr. Erica Eugster

02:30-02:45PM | Break

02:45-03:15PM

Reproductive Health in Women & Girls w/ CAH

Dr. Amy Boone

03:15-03:45PM

Chronic Diseases & Stress Management

Dr. Helen Young

*03:45-04:45PM

Parents with Young Children (Panel)

*03:45-04:45PM

Teen Panel

04:45-05:00PM

Tribute to Dr. Richard Rink & Closing Remarks

08:00-08:30AM | Light breakfast & registration

*08:30-09:00AM

Advocating for the School-Aged Child

Dr. David Sandberg

*08:30-09:00AM

Late Surgical Interventions

Drs. Whittam & Roth 

09:00-9:30AM

Transition & Care for the Adult w/ CAH

Dr. Zarwa Idreees

09:30-10:00AM

Mental Health and CAH 

Dr. David Sandberg

10:00-10:30AM

CARES Research Updates 

*10:35-11:35PM

Men’s Panel

*10:35-11:35PM

Women’s Panel

11:40-12:40PM | Lunch & Closing Remarks

Solu-Cortef Injection Training Schedule:

Saturday, Sept. 20, 2025

  • 09:15-09:45AM
  • 10:30-11:00AM
  • 02:45-03:15PM

Are you interested in helping to shape the future of CAH treatments?

If yes, then please consider participation in our 2025 Patient Advisory Summit on September 21st in Indianapolis. Please complete the interest form ASAP by visiting below.

If you are selected as a participant, you will join a group of individuals living with CAH and CAH caregivers in a meeting with the leading companies developing new CAH treatments. The meeting will take place between 12:30 and 8pm right after our Patient Education Conference. You will be paid for your time and your hotel stay will be covered. You may apply for a scholarship for travel as well.

To access the scholarship application for this year’s conference, please click here

More information on recommended hotels coming soon.

Recommended hotels include: 

  • The JW Marriott – Indianapolis
  • Courtyard Indianapolis Downtown

If you are interested in learning more about how you/your organization can sponsor this event, please email bea@caresfoundation.org

CONTACT

2414 Morris Avenue, Ste 110
Union, NJ 07083

Phone: (908)364-0272

Toll Free: (866)2273737

Fax: (908)686-2019
contact@caresfoundation.org