Please join us for a weekend filled with educational & informative speakers and a chance to connect with other patients, parents, families, medical professionals, industry partners, and more!
The deadline to register for the LIVESTREAM is Tuesday, September 16, 2025, at 11:55PM(ET)
Click below to see the full conference agenda for both Saturday & Sunday!
08:00-09:00AM | Light breakfast & registration
09:00-09:15AM
Opening Remarks
Dina Matos, CARES Executive Director
*09:15-09:30AM
CAH Research Updates
Dr. Konrad Szymanski
*09:15-09:45AM
CAH Overview
Dr. Rita Saroufim
09:45-10:15AM
Glucocorticoids Effects on Bone Health
Dr. Erik Imel
10:15-10:30AM | Break
10:30-11:00AM
Research Updates (Adults & Peds)
Dr. Mitch Geffner
11:00-11:30AM
Genetics of CAH
Dr. Theodore Wilson
11:30-12:00PM
Managing Illness at Home; Stress Dosing (Q&A)
Dr. Alex Tuttle
12:00-01:00PM | Lunch
*01:00-01:30PM
Adrenal Rest Tumors
Dr. Todd Nebesio
*01:00-01:30PM
Early Surgical Intervention
Drs. Whittam & Meldrum
*01:30-02:00PM
Non-Classic CAH + Q&A
Drs. Haddad & Fuqua
*01:30-02:00PM
Talking to Your Child About Surgery
Dr. Kelly Donahue
02:00-02:30PM
Glucocorticoid Regimens & Considerations | A Pediatric Perspective
Dr. Erica Eugster
02:30-02:45PM | Break
02:45-03:15PM
Reproductive Health in Women & Girls w/ CAH
Dr. Amy Boone
03:15-03:45PM
Chronic Diseases & Stress Management
Dr. Helen Young
*03:45-04:45PM
Parents with Young Children (Panel)
*03:45-04:45PM
Teen Panel
04:45-05:00PM
Tribute to Dr. Richard Rink & Closing Remarks
08:00-08:30AM | Light breakfast & registration
*08:30-09:00AM
Advocating for the School-Aged Child
Dr. David Sandberg
*08:30-09:00AM
Late Surgical Interventions
Drs. Whittam & Roth
09:00-9:30AM
Transition & Care for the Adult w/ CAH
Dr. Zarwa Idreees
09:30-10:00AM
Mental Health and CAH
Dr. David Sandberg
10:00-10:30AM
CARES Research Updates
*10:35-11:35PM
Men’s Panel
*10:35-11:35PM
Women’s Panel
11:40-12:40PM | Lunch & Closing Remarks
Solu-Cortef Injection Training Schedule:
Saturday, Sept. 20, 2025
Are you interested in helping to shape the future of CAH treatments?
If yes, then please consider participation in our 2025 Patient Advisory Summit on September 21st in Indianapolis. Please complete the interest form ASAP by visiting below.
If you are selected as a participant, you will join a group of individuals living with CAH and CAH caregivers in a meeting with the leading companies developing new CAH treatments. The meeting will take place between 12:30 and 8pm right after our Patient Education Conference. You will be paid for your time and your hotel stay will be covered. You may apply for a scholarship for travel as well.
To access the scholarship application for this year’s conference, please click here.
More information on recommended hotels coming soon.
Recommended hotels include:
If you are interested in learning more about how you/your organization can sponsor this event, please email bea@caresfoundation.org.