Neurocrine Biosciences, Inc. is excited to share the launch of a new educational initiative for the congenital adrenal hyperplasia community called: WHAT THE C@H?!.
The effort aims to close the gap in the need for helpful information about CAH and acknowledges the frustrations and challenges experienced by the community in managing the condition.
WHAT THE C@H?! was informed by dozens of interviews conducted with people living with CAH, their family members and healthcare providers. All community members expressed that living with CAH can be frustrating, including the challenges of experiencing symptoms of low cortisol or excess androgens, as well as side effects from high doses of glucocorticoids. This can lead to the question…WHAT THE C@H?!
The website will offer a space to share and read stories regarding CAH experiences. You can submit your own WHAT THE CAH?! moment, a challenging experience of living with or managing the condition, for potential inclusion on the site. We are excited to introduce this educational initiative for adults and adolescents living with CAH, parents of children with CAH and providers who treat the condition. We are committed to fulfilling unmet needs in CAH and will continue to expand the WHAT THE CAH?! website to include stories and experiences, in addition to more educational information and resources. We hope you will share your story and that you find it helpful and relatable.
To learn more, view the press release here.
For more information and to share your WHAT THE C@H?! moment, visit WhatTheCAH.com, and follow on Facebook.
You can also learn more about Neurocrine and their work to help people with great needs, but few options by visiting their website at neurocrine.com.
To learn more about WHAT THE C@H?!, please visit whatthecah.com.
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