Please note: CARES Foundation does not intend links on this online site to be referrals or endorsements of the linked entities and offers no comment regarding the contents of other websites linked to this website.
CAH Info in other Languages
Your Child With CAH in Vietnamese
Your Child With CAH in Chinese
Crescendo Hon HAC :Um livro para criancas com Hiperplasia Adrenal Congenita aprenderem o que e a doenca e como lidar com ela (in Portuguese/Brazilian). For English version, click here.
Email us for different guides in other languages.
Creating a Family Health History
Heartland Regional Genetics Network – “Family History Tools”
Drugs and Medications
Hormone Therapies
Anti-androgen and aromatase inhibitors explained
CYP
Understanding individual reactions to medications and differences
MEDICATION ALERT: EMS Protocols for Adrenal Crisis
Emergency
CARES’ Emergency Instructions Brochure
Knowing How and When to Give Emergency Injection
EMS Protocols for Adrenal Crisis
Emergency ID and Medical Info (NADF)
Wallet-size Emergency Injection Instructions
General
Let’s Cure ACC – International Adrenal Cancer Organization
MEDICATION ALERT: EMS Protocols for Adrenal Crisis
CongenitalAdrenalHyperplasia.org Message Board
NADF – National Adrenal Diseases Foundation
CLAN – Caring and Living as Neighbours
Rare Diseases Clinical Research Network
Johns Hopkins University, Division Of Pediatric Endocrinology
Hormone Health Network from the Endocrine Society
The Pediatric Endocrine Society – formerly named for LawsonWilkins
The National Institutes of Health
American Society for Reproductive Medicine
American Association of Clinical Endocrinologists
International Fund Congenital Adrenal Hyperplasia
IFCAH CAH Research Symposium Info
Genetics
A Guide to Understanding Genetics & Health
GINA – Genetic Information Nondiscrimination Act
Probablity of gene combinations
21-hydroxylase deficiency information in the Genetics Home Reference
National Center for Biotechnology Information (OMIM)
International Support Groups
CLIMB CAH Support Group, UK
Great Ormond Street Hospital CAH Parent and Patient Group, UK
CAH Support India – Facebook Group/Page
CLAN (Care and Living as Neighbours) CAH Support
Association Surrénales, France
NVACP, Netherlands
Congenital Adrenal Hyperplasia Support Group of New Zealand (CAHNZ Trust)
Die AGS-Eltern- und Patienteninitiative e.V., Germany
Riksföreningen för Congenital Adrenal Hyperplasia, Sweden
IKAHAK (Ikatan Keluarga Hiperplasia Adrenal Kongenital) – Indonesia – Email: ikahak@gmail.com
Medication, Laboratories and Conversions
SI and Conventional Conversion Calculator
Message Boards/Chat Groups
Chat Group for Women with Late-onset CAH
CAHSisters2 is a listserv for adult women with late-onset CAH. You can subscribe to this listserv through Yahoo! Groups, a free, easy-to-use email group service.
Other Rare Disease Resources
Global Genes™ – one of the leading rare disease patient advocacy organizations in the world.
National Organization of Rare Diseases (NORD)
Resources for Women
Center for Young Women’s Health – The Center for Young Women’s Health (CYWH) is a collaboration between the Division of Adolescent and Young Adult Medicine and the Division of Gynecology at Boston Children’s Hospital.
Resources for Coping with Loss
Surgery
CONTACT
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Union, NJ 07083
Phone: (908) 364-0272
Toll Free: (866) 227-3737
Fax: (908) 686-2019
contact@caresfoundation.org