CARES sponsors regular support group meetings which were formerly via telephone and now are hosted via Zoom*. During these meetings, CAH patients, family member, caregivers and other relatives, can ask questions, make connections and get the support they need. Most, if not all, Zoom meetings will include a doctor who specializes in the treatment of CAH. Sometimes, CARES’ Support Group Leaders will also join to offer their advice and counsel as a specialized member of CARES support team.
Support group meetings are divided according to CAH type and often by age of patient. Regular meetings include:
- Parents of CAH Children (ages newborn through age 5)
- Parents of Children, Teens & Young Adults with CAH
- Women with CAH
- Pacientes y families de CAH de habla hispana (Spanish-speaking CAH patients and families)
- Young Adults with CAH
Check our website event calendar for meeting dates.
*Please note: participants in these Zoom meetings may opt out of using video
If you would like to join any of the below listed Secret Facebook Groups, please click the link provided below and request access to join directly through the specific group/group(s). If you are on a mobile device, please select ‘About’ then ‘Groups’ to view.
You can find a list of the 26 Specialized Secret Facebook Groups that we offer below:
- CAH Women 50+
- CAH-X (CAH + EDS)
- Mexico CAH
- CAH Athletes
- Parents of Young Adults (Ages 20-35)
- Adoption & CAH
- Newborns
- Classic CAH Women
- CAH Partners/Spouses
- 17 Hydroxylase
- Parents and Caregivers of Girls with NCAH
- CARES Support Group Leaders
- NCAH Women
- Men and Dads with Sons with CAH
- Teens with CAH
- Surgery
- Parents/Caregivers of Teens with CAH
- Grandparents of CAH Children
- Parents of Kids with NCAH
- Men w/ CAH
- 3 Beta Women
- Bereavement Support Group
- 11 Beta
- Parents of Kids with CAH
- Parents of College Students with CAH
- Young Adults with CAH (21-35)
CARES also hosts in-person support group meetings that were previously held in NYC and in California. We have not hosted a live event in a while, due to the pandemic, but hope to host new ones soon!
Please remember our Ask the Expert service for medical advice, and our private Facebook groups to connect with the CAH community!
CONTACT
2414 Morris Avenue, Ste 110
Union, NJ 07083
Phone: (908) 364-0272
Toll Free: (866) 227-3737
Fax: (908) 686-2019
contact@caresfoundation.org
- Parents of CAH Children (ages newborn through age 5)
- Parents of Children, Teens & Young Adults with CAH
- Women with CAH
- Pacientes y families de CAH de habla hispana (Spanish-speaking CAH patients and families)
- Young Adults with CAH