Patient Advisory Summit | September 20, 2024
Robert Wood Johnson University Hospital | New Brunswick, NJ
CARES is seeking PAIRS of parents and their teen/young adults (ages 15-23) living with Classic CAH to join an advisory session concurrent with the 2024 CAH Annual Education Conference in New Brunswick, NJ. The purpose of the advisory board is for representatives from the pharmaceutical industry to listen to patient/caregiver insights on living with and managing CAH. This group is eager to learn more about CAH from this community to inform their product development activities. All pharmaceutical companies involved, have CAH treatments/therapies in development.
Each participant will be compensated for their time. If you and your family member are interested in participating, please complete the Intake Form.
Register for this year's conference!
Mark your calendars for September 21 & 22, 2024, for the 2024 Annual CAH Educational Conference presented by CARES Foundation & Rutgers Robert Wood Johnson Medical School/Rutgers Child Health Institute and take advantage of this fantastic opportunity to learn about all aspects of CAH and connect with other patients & families.
If you would like to learn more about the upcoming conference, and/or register to attend, please use the link provided below!
Interested in receiving a scholarship to attend this event?
Scholarships are limited and can be accessed using the button below. Please email your completed scholarship application to john@caresfoundation.org as soon as possible. Scholarships will be awarded on a rolling basis, and are once again, limited.
ALL APPLICATIONS FOR SCHOLARSHIP MUST BE SUBMITTED BY AUGUST 12, 2024.
Hotel Accommodations
Hotel accommodations will be on a first come, first serve basis. Any accommodations can be made through the Hyatt Regency New Brunswick. Rooms must be booked by August 29, 2024. Available rooms include a Guest Room Double and Guest Room King. $189.00 standard room rate single/double.
Guest Room Block: Thursday, September 19, 2024 – Tuesday September 24, 2024
Rates are net, in U.S. Dollars, per room, per night.
Rates do not include tax, currently 14.625%.
Rates are valid for 1 days before and 1 days after the official group dates
Check-in: from 3:00PM | Check out: 12:00PM
Session Topics
Day 1 | Saturday, September 21, 2024
7:30AM-5:00PM(ET)
CAH Overview | Ian Marshall, MD
Clucocorticoids and Long Term Effects on Bone Health | David Weber, M.D.
Behavorial Traits in Children with CAH | Heino Meyer-Bahlburg, PhD
The Genetics of CAH | Milen Vilenov, MD
Community Research Update
Non Classical CAH – To Treat or Not to Treat | Deborah Merke, M.D.
Sports and CAH | Ahmed Khattab, M.D.
CAHtalog Registry Update
Transition in CAH | Leslie Pitts
What Do the Numbers Mean? Understanding Laboratory Results | Karen Su, M.D.
CAH Adult Women Panel
Day 2 | Sunday, September 22, 2024
8:30AM-12:30PM(ET)
Reproductive Health in CAH | Rich Auchus, M.D.
Current Trends in CAH Surgery | Dix Poppas, M.D.
New Medications on the Horizon | Mitch Geffner, M.D.
Sports and CAH | Ahmed Khattab, M.D.
Adrenal Rest Tumors in CAH | Oksana Lekarev, M.D.
How CAH Affects Siblings/Family | Karen Su, M.D.
Breakout Sessions
Day 1 | Saturday, September 21, 2024
7:30AM-5:00PM(ET)
Women with CAH Q & A | Deborah Merke, M.D.
School Issues | Leslie Pitts
Intimacy and Relationships Q & A | Heino Meyer-Bahlburg, PhD
CAH Adult Panel (Men)
Day 2 | Sunday, September 22, 2024
8:30AM-12:30PM(ET)
Teens Panel
Men with CAH Q & A | Ian Marshall, M.D.
When & How to Talk to Your Daughter About Surgery | Dix Poppas, M.D.
Training Sessions
Days 1 & 2
- Injection Training
- Alkindi Sprinkle Administration Training
CONTACT
2414 Morris Avenue, Ste 110
Union, NJ 07083
Phone: (908) 364-0272
Toll Free: (866) 227-3737
Fax: (908) 686-2019
contact@caresfoundation.org
