Patient Education Conference 2024

The 2024 Annual CAH Educational Conference presented by CARES Foundation & Rutgers Robert Wood Johnson Medical School/Rutgers Child Health Institute is an amazing opportunity to learn about all aspects of CAH and connect with other patients & families.

Directions

All events will be held at the Clinical Academic Building located at:
125 Paterson Street, New Brunswick, NJ 08901

Our events, (Welcome Reception & Annual CAH Education Conference) will be held at 125 Paterson Street, New Brunswick, NJ 08901. The closest parking for visitors & guests is the self-pay Paterson Street parking deck (located at 124 Paterson Street across from the Clinical Academic Building) available 24-hours-a-day, seven-days-a-week.

Session Topics

Day 1 | Saturday, September 21, 2024

7:30AM-5:00PM(ET)

07:30AM-08:30AM(ET) – Breakfast and Check-In

08:30AM-08:40AM(ET) – Welcome & Opening Remarks | Dina Matos

08:40AM-09:20AM(ET) – CAH Overview | Karen Lin Su, M.D.

09:20AM-10:00AM(ET) – Clucocorticoids and Long Term Effects on Bone Health | David Weber, M.D.

10:00AM-10:40AM(ET) – Behavorial Traits in Children with CAH | Heino Meyer-Bahlburg, PhD

10:40AM-11:20AM(ET) – The Genetics of CAH | Milen Vilenov, MD

11:20AM- 12:00PM(ET) – Community Research Update

12:00PM-01:00PM(ET) – Lunch & Break

01:00PM-01:40PM(ET) – Non Classical CAH – To Treat or Not to Treat | Deborah Merke, M.D.

01:40PM-02:20PM(ET) – Adrenal Rest Tumors in CAH | Oksana Lekarev, M.D.

02:20PM-3:00PM(ET) – CAHtalog Registry Update

03:00PM-3:40PM(ET) – Bridging the Gap: Transitioning Care for Youth with CAH | Leslie Pitts, MSN, CRNP, CPNP-AC, CDCES, AP-PEN

03:40PM-04:20PM(ET) – What Do the Numbers Mean? Understanding Laboratory Results | Karen Lin Su, M.D.

04:20PM-05:00PM(ET) – CAH Adult Women Panel | Deborah Merke, M.D.; CAH Adult Men Panel | Ahmed Khattab, M.D.

Day 2 | Sunday, September 22, 2024

8:00AM-12:30PM(ET)

08:00AM-09:00AM(ET) – Breakfast & Check-In

09:00AM-09:40AM(ET) – Reproductive Health in CAH | Richard Auchus, M.D.

09:40AM-10:20AM(ET) – Current Trends in CAH Surgery | Dix Poppas, M.D.

10:20AM-11:00AM(ET) – New Medications on the Horizon | Mitchell Geffner, M.D.

11:00AM-11:30AM(ET) – Sports and CAH | Ahmed Khattab, M.D.

11:30AM-12:10PM(ET) – How CAH Affects Siblings/Family | Karen Lin Su, M.D. ; Louise Fleming, PhD, MSN-Ed, RN, FAAN

12:10PM-1:00PM(ET) – Lunch & Closing Remarks

Breakout Sessions

Day 1 | Saturday, September 21, 2024

7:30AM-5:00PM(ET)

01:00PM-01:40PM(ET) – Caring Classrooms: Navigating CAH in School Settings | Leslie Pitts, MSN, CRNP, CPNP-AC, CDCES, AP-PEN

02:20PM-03:00PM(ET)Intimacy and Relationships Q & A | Heino Meyer-Bahlburg, PhD

Day 2 | Sunday, September 22, 2024

8:00AM-12:30PM(ET)

09:00AM-09:40AM(ET) – Teen Panel | Megan Romano, LCSW; Karen Lin Su, M.D.

11:00AM-11:30AM(ET) – When & How to Talk to Your Daughter About Surgery | Dix Poppas, M.D.

Training Sessions

Day 1

Injection Training

09:20AM-10:00AM(ET)

10:00AM-10:40AM(ET)

Alkindi Sprinkle Training

3:00-3:40PM(ET)

Day 2

Injection Training

09:40AM-10:20AM(ET)

Alkindi Sprinkle Training

10:20-11:00AM(ET)

Hotel Accommodations

Hotel accommodations will be on a first come, first serve basis. Any accommodations can be made through the Hyatt Regency New Brunswick. Rooms must be booked by September 3, 2024. Available rooms include a Guest Room Double and Guest Room King. $189.00 standard room rate single/double.

Guest Room Block: Thursday, September 19, 2024 – Tuesday September 24, 2024

Rates are net, in U.S. Dollars, per room, per night.

Rates do not include tax, currently 14.625%.

Rates are valid for 1 days before and 1 days after the official group dates

Check-in: from 3:00PM | Check out: 12:00PM