Support Group Meetings
Via Zoom
CARES sponsors regular support group meetings which were formerly via telephone and now are hosted via Zoom*. During these meetings, CAH patients, family member, caregivers and other relatives, can ask questions, make connections and get the support they need. Most, if not all, Zoom meetings will include a doctor who specializes in the treatment of CAH. Sometimes, CARES’ Support Group Leaders will also join to offer their advice and counsel as a specialized member of CARES support team.
Support group meetings are divided according to CAH type and often by age of patient. Regular meetings include:
- Parents of CAH Children (ages newborn through age 5)
- Parents of Children, Teens & Young Adults with CAH
- Women with CAH
- Pacientes y families de CAH de habla hispana (Spanish-speaking CAH patients and families)
- Young Adults with CAH
To view the full calendar of Support Group Meetings in 2026, please click here.
If you would like to register for any upcoming meetings, please email support@caresfoundation.org.
*Please note: participants in these Zoom meetings may opt out of using video
Private (Secret) Facebook Groups
If you would like to join any of the below listed Secret Facebook Groups, please visit Congenital Adrenal Hyperplasia Support Network on Facebook, and ‘Request Access’ to join directly through the specific group/group(s).
If you are on a mobile device, please select ‘About’ then ‘Groups’ to view. You can then select the group/group(s) you are interested in and ‘Request Access’
You can find a list of the 26 Specialized Secret Facebook Groups that we offer below:
- CAH Women 50+
- CAH-X (CAH + EDS)
- Mexico CAH
- CAH Athletes
- Parents of Young Adults (Ages 20-35)
- Adoption & CAH
- Newborns
- Classic CAH Women
- CAH Partners/Spouses
- 17 Hydroxylase
- Parents and Caregivers of Girls with NCAH
- CARES Support Group Leaders
- NCAH Women
- Men and Dads with Sons with CAH
- Teens with CAH
- Surgery
- Parents/Caregivers of Teens with CAH
- Grandparents of CAH Children
- Parents of Kids with NCAH
- Men w/ CAH
- 3 Beta Women
- Bereavement Support Group
- 11 Beta
- Parents of Kids with CAH
- Parents of College Students with CAH
- Young Adults with CAH (21-35)
In-Person
CARES also hosts in-person support group meetings that were previously held in NYC and in California. We have not hosted a live event in a while, due to the pandemic, but hope to host new ones soon!
Don't Forget!
Please remember to utilize our Ask the Expert service for medical advice. You can also connect with the CAH Community through our private Facebook groups!
CONTACT
2414 Morris Avenue, Ste 110
Union, NJ 07083
Phone: (908) 364-0272
Toll Free: (866) 227-3737
Fax: (908) 686-2019
contact@caresfoundation.org
