CARES, CAH, Congenital Adrenal Hyperplasia, PACE App

Patient Advisory Summit | September 20, 2024

Robert Wood Johnson University Hospital | New Brunswick, NJ

CARES is seeking PAIRS of parents and their teen/young adults (ages 15-23) living with Classic CAH to join an advisory session concurrent with the 2024 CAH Annual Education Conference in New Brunswick, NJ. The purpose of the advisory board is for representatives from the pharmaceutical industry to listen to patient/caregiver insights on living with and managing CAH. This group is eager to learn more about CAH from this community to inform their product development activities. All pharmaceutical companies involved, have CAH treatments/therapies in development.

Specifically, we are looking for participants who meet the following criteria:

  1. Male & Female Patients with a confirmed diagnosis of classic CAH between ages 15-23, and their parents/caretakers
  2. Must physically attend the CAH Patient Advisory Summit
  3. Not open to previous participants
  4. U.S. resident
  5. A current member of the CARES community (free to join: www.caresfoundation.org/join-the-cares-community)

Each participant will be compensated for their time

If you and your family member are interested in participating, please complete the Intake Form.

CONTACT

2414 Morris Avenue, Ste 110
Union, NJ 07083

Phone: (908) 364-0272

Toll Free: (866) 227-3737

Fax: (908) 686-2019
contact@caresfoundation.org

CAH, Congenital Adrenal Hyperplasia, CARES Foundation, What is CAH