Winter 2006                                                    CARES Foundation, Inc.

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Parent Tips

Book Review

Parent Tips

Emergency Kits
Keep your Solu-Cortef vial and syringe in a travel toothbrush holder. It will help to protect the needle and vial in your purse.

Create business card sized information cards in bright colors to staple to permission slips and give to caregivers. Include your emergency numbers, your physician’s name and a brief explanation of adrenal crisis and physical stress.

- Natalie Rechner, WI
 

Breastfeeding
The Medela Starter Supplement Nursing System™ is a great tool for mothers who want to breastfeed but also need to supplement their baby’s salt intake. The system, which is attached to you while breastfeeding, allows you to
deliver a salt solution while breastfeeding (but you will need to ask your doctor how to mix the correct concentration). The Medela system is available online or
through your lactation consultant.

-Robin Hendricks, AZ
 

Emergency Instructions             

** NEW**

Those of you who received a Year End fundraising letter or recent new member packet also received our new Emergency Instructions.

The response we received from distributing this information has been overwhelming and we thank you all for your enthusiasm and kind words. Several of you have requested additional copies for caregivers and school officials and we are happy to provide them free of
charge (but donations are always welcome).
 

If you would like additional copies or have not received this pamphlet, please contact our office and we will be happy to send them to you.
 

Email: Erin@caresfoundation.org
Toll Free: (866) 227-3737

CAH: A Parents’ Guide
 

Written by one of our medical advisors, Scott Rivkees, MD, and Carol Hsu, a parent of a child with CAH, this book is an excellent resources for both parents of newly diagnosed children as well as the more seasoned.

Written in language that is easy to understand, the book explains in detail all aspects of CAH care from genetics to prenatal diagnosis and therapy.

We use the book in our office almost daily and recommend it to all new members who join our organization. Comprehensive and well written, CAH: A Parent’s Guide is a must have for all families and individuals affected by this disorder.

This book is available online through www.AuthorHouse.com,

www.BarnesandNoble.com and

www.Amazon.com .

New Product Update

E-HealthKEY®

MedicAlert has developed a new comprehensive medical tool to track and manage your health. The E-HealthKey uses a USB device attached to your key chain to organize and manage your medical information including medications, insurance, vaccinations and family history.
 

While the E-HealthKEY is an excellent tool, it will take some time before all medical offices and hospitals will use it. It is highly recommended that all people with CAH wear a medical ID bracelet to alert medical personnel in an emergency.

The Emergency Screen, which contains your basic life-saving medical information (ie Adrenal Insufficiency) and the MedicAlert emergency telephone number, appears each time the E-HealthKEY program is run. In an emergency situation, medical personnel can call MedicAlert for other pertinent information, but the remaining information contained on the E-HealthKEY will remain secure and confidential.

The E-HealthKEY also allows for easy update of medical files and synchronization with MedicAlert. You can update your records, attach and email documents, print customized emergency cards and even develop graphs using medical tests.

To order the E-HealthKEY or MedicAlert bracelets call
1-888-633-4298 or go online to www.MedicAlert.org.

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