Volunteers Needed!!
| Fall 2003 CARES Foundation, Inc. | |
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Volunteers Needed!! | |
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| We are looking for volunteers to help us respond to the growing number of emails and phone calls we are getting from new families with CAH. Specifically, we are looking for parents or relatives of CAH individuals who are medically trained or are otherwise well versed in the medical aspects of CAH. If you can spare just a couple of hours a week, please consider volunteering your services by making a direct impact on other peoples lives.
wwwww We need members who have experience dealing with international programs in developing nations or who have international contacts. We are looking into providing drug donations to CAH patients in developing countries where these drugs are not available or exorbitantly expensive. We need people to help us set up this program. If you can help, please let us know!Email: Kelly@caresfoundation.org or call: 1-866-227-3737. |
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Financial & Pharmaceutical Assistance Available |
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| Often, the most experienced physicians/surgeons are at a great distance from the homes of CAH patients and seeing them requires travel and lodging expenses. CARES Foundation offers small grants to families who have legitimate financial need to help cover the costs of travel for this purpose. CARES has also negotiated reduced rate rooms at the Helmsley Hotel in New York for families needing to travel to Manhattan for specialist care. Visit our website for more information about travel assistance for medical care.
wwwww The organization called PhRMA has a list of patient assistance programs offered by each drug company for prescription drugs at http://www.phrma.org/pap/. If you cannot pay for medication, these programs can help. On that same internet page in the right hand column, it has links for other types of government supported and private assistance programs.
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CAH Family Support Groups Around the Country (Note: This listing is as of Fall 2003. For the most current listing, click here) |
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| Alabama
Contact Susan Davenport 205-665-1934 susand@sepcousa.com Arizona Contact Michelle May 480-759-0870 michlmay@aol.com Indiana Jennifer Lynn 317-823-1317 jenannlynn@aol.com
Mississippi Susan Aycock 601-833-8373 SHAycock822@aol.com Texas Contact Sandra Billings 281-861-6043 billprop1@msn.com Wisconsin Contact Lisa Jaskie ( 414) 645-0782lisa1273@msn.com |
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| © 2003 CARES Foundation, Inc. All rights reserved. Republication or redistribution of CARES content, including by framing or similar means, is prohibited without the prior written consent of CARES. | |||
