| Fall 2003 CARES Foundation, Inc. | |
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Audio Tapes from the 2003 Endocrine Society Annual Meeting Available for Purchase | |
| You may wish to order the audiocassettes from the 2003 Endocrine Society meetings. The tapes of the keynote speeches are available through www.CMEunlimited.org/es The tapes that pertain to CAH and androgen excess disorders are:
# 25--Diagnosis of Adrenal Disorders—first lecture is by Dr. Ricardo Azziz on diagnosing nonclassical CAH; #43--Diagnosis and Management of Sexual Ambiguity, Dr. Melvin Grumbach, Dr. Peter Lee and Dr. Gary Berkovitz; #57-- Behavioral and Reproductive Consequences of Prenatal Androgen Exposure, David Abbott, Kim Wallen and Lourdes Ibanez; #76-- Treatment of Congenital Adrenal Hyperplasia, Dr. Deborah Merke, Dr. Gerard Conway, and Dr. Stefan Bornstein; #120 --Meet the Professor: Congenital Adrenal Hyperplasia, Dr. Patricia Donohoue; and #142-- Polycystic Ovarian Syndrome, Dr. Ricardo Azziz. The tapes can be ordered for $12 each plus shipping online at www.CMEunlimited.org/es or by calling 1-800-776-5454 or by FAX at 818-504-2771 or by mail at 7764 San Fernando Road, Suite 13, Sun Valley, CA 91352. |
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New Genetics Museum |
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| The Stetten Museum of the Office of NIH History is pleased to announce a new internet exhibit based on existing physical exhibits in the NIH Clinical Center: A Revolution in Progress: Human Genetics and Medical Research http://history.nih.gov/exhibits/genetics/. Genetics research is important in the prevention and treatment of disease. This exhibit provides information on what DNA, genes, and chromosomes do in our bodies, explains how basic research has led to a better understanding of genetic research, and discusses the scope, purpose, and techniques of the Human Genome Project to map and decode our genes. The exhibit poses such questions as: How do genes cause disease? Can gene therapy work? How do we manipulate genes and should we? The exhibit has a "Just for Kids" section that helps to teach kids about the history and role of genetics in our world. This would be a good tool to teach our children about the genetic aspects of CAH. This exhibit was produced by the Stetten Museum in collaboration with the National Institute of Allergy and Infectious Diseases, the National Cancer Institute, the National Human Genome Research Institute, the National Institute of General Medical Sciences, and the National Heart, Lung, and Blood Institute. |
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(Solutions for Common Problems)
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| Are you having trouble getting Solu-cortef from your pharmacy? We Were!!
F or months our local pharmacy would call us and say, "Sorry, still not in, we'll call you as soon as it gets here." The pharmacy called around to other pharmacies and still no luck.Finally a bright idea came to mind - our hospital has had it when we needed it, wonder if the hospital pharmacy could sell a vial to me? So I made a call and sure enough the hospital was stocked with it, but they could not sell it out right to me. BUT, they could transfer it to our local pharmacy and they could sell it to us. So if you are having trouble getting Solu-Cortef give you hospital pharmacy a call. Note: We were also told my another CAH family, if you call the product maker of solu-cortef (Pfizer), they will drop ship you an order. We have not had to do that, but that is another option. Rob Simmons, Father of a 2 year old daughter with CAH If anyone is interested in sharing their ideas/solutions with other families, please send us an email or a letter and we will print in our next newsletter. The CARES newsletter is published three times a year. |
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